What We Do
The Chromophobe and Oncocytic Tumor Alliance (COA) is a non-profit organization with a mission to bring together and support a community of patients, organizations, physicians and researchers dedicated to advancing the understanding, research and treatment of chromophobe renal cell carcinoma and other oncocytic tumors. We aim to foster collaboration, promote education and awareness, and to fund research to further these efforts. We are a volunteer based organization and donations go to supporting and funding research.
Our Focus
Our primary focus currently is supporting, championing and unblocking research for chromophobe renal cell carcinoma. We will also be building out and adding resources for other renal oncocytic tumors such as oncocytomas, SDH and others as our efforts and resources expand.
Our mission for chRCC is to fund research that aims to identify biological hallmarks of chRCC to deepen learnings across institutions and to support efforts that aim to identify and test distinct therapeutic approaches. Additionally, we aim to promote collaboration, create resources for those affected by the disease and to advance the understanding of chRCC through the dissemination of knowledge and research.
Our scientific advisory board includes leading researchers and physicians including Elizabeth Henske, MD and Pavlos Msaouel, MD PhD.
Make a Difference
Donate to COA
Recently Funded Efforts
In collaboration with the KCA
Chromophobe Research Grant
Donations to COA helped fund a $75,000 research grant in collaboration with the Kidney Cancer Association to be awarded and announced at the end of 2024.
Upcoming Projects
Opportunities to get involved
Patient Registry and Survey
Sign up to be notified about the patient registry and surveys we'll be opening for chromophobe renal cell carcinoma aimed to improve understanding, treatment, and patient outcomes through collaborative research efforts.
Opportunities to get involved
Share your story
Your story matters and can drive meaningful change. Sign up to be notified about opportunities to share your experience with chrcc, helping raise awareness and shape future advocacy efforts.
